Latest news

Headlines is seeking a new trustee to take over from our Honorary Treasurer, Charles Edwards, who stands down in September after 7 years...

Last year, we worked with Dr Nicola Stock and her team from the Centre for Appearance Research at UWE Bristol to produce a leaflet for...

We are delighted to have been accepted as an introductory member of the Association of Medical Research Charities (AMRC). AMRC brings...

Packed full of news and information, Headline News is our annual magazine, posted out to all members. The 2022 issue is out NOW - ...

We are delighted to have been chosen as charity of the year by the wonderful folk at the Birmingham office of global law firm Squire...

We are marking #RareDiseaseDay2022 with the launch of our first-ever research strategy, setting out a framework for our research work...

After several postponements as a result of the pandemic, our team of fearless fundraisers finally made it to the top (and bottom!) of...

Congratulations to our chair of trustees, Paul Cornell, who completed the 2021 Royal Parks Half Marathon in London earlier this month...

It was wonderful to welcome 80 members to this year's Family Weekend at the Pioneer Centre in Shropshire over the weekend of the...

Earlier this year we launched the Headlines Research Fund, which provides small grants for research aiming to identify the causes and...

We bid a fond farewell to our chair of the past 4 years, Wendy Edwards, at our AGM in June. Wendy served as a trustee of Headlines for...

We were delighted to be nominated by Headlines members Bev and Steve for a donation from the Maximus Foundation UK recently. Steve and...

Our long awaited 2020 Conference & Information Day was originally scheduled for 21st March in London - thankfully we took an early...