
Our patron
Professor Andrew Wilkie
FMedSci FRS
Professor Wilkie is the clinical geneticist who identified the gene mutation responsible for Apert syndrome and the molecular pathways underlying this and other craniosynostosis conditions. He is Nuffield Professor of Pathology at the MRC Weatherall Institute of Molecular Medicine at the University of Oxford and an Honorary Consultant in Clinical Genetics, Oxford University Hospitals NHS Trust.
Our trustees

Charlotte Ashby
Charlotte is an adult with unicoronal craniosynostosis

Paul Cornell
Chair
Paul is the parent of a child with Saethre-Chotzen syndrome

Charles Edwards
Treasurer
Charles is the parent of a child with sagittal craniosynostosis

Barry Fletcher
Vice Chair
Barry is an adult with and the parent of a child with sagittal craniosynostosis

Dr. Caroline Hilton
Secretary
Caroline is parent of a young adult with Apert syndrome

Dr. Mehran Moazen
Mehran is a Lecturer in Biomedical Engineering and Associate Professor at UCL

Darren Sloan
Darren is the parent of
a child with bi-coronal craniosynostosis

Colette Turnock
Colette is a Craniofacial
Nurse Specialist at Alder Hey Children’s Hospital
Our staff

Karen Wilkinson-Bell
Charity Director

Donna Connett
Charity Administrator