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Our patron

Professor Andrew Wilkie


Professor Wilkie is the clinical geneticist who identified the gene mutation responsible for Apert syndrome and the molecular pathways underlying this and other craniosynostosis conditions.   He is Nuffield Professor of Pathology at the  MRC Weatherall Institute of Molecular Medicine at the University of Oxford and an Honorary Consultant in Clinical Genetics, Oxford University Hospitals NHS Trust.

Our trustees
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Charlotte Ashby

Charlotte was born with unicoronal craniosynostosis

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Paul Cornell


Paul  has a son with Saethre-Chotzen syndrome

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Charles Edwards


Charles has a son  with sagittal craniosynostosis

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David Coleman

David  has a son with Apert syndrome

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Dr. Caroline Hilton


Caroline has a daughter with Apert syndrome

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Prof. Mehran Moazen

Mehran is Professor of  Biomedical Engineering at UCL

Darren Sloan

Darren has a daughter with bi-coronal craniosynostosis

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Lucy Pearse

Vice Chair

Lucy  has a son with metopic craniosynostosis

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Neil Bowyer

Neil was born with Saethre Chotzen syndrome

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Laura Melles

Laura was born with Apert syndrome

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Richard Williams

Richard has a son with Mercedes Benz Pattern craniosynostosis

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Zoe Hilton-Webb

Zoe was born with Apert  syndrome

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Mark Lindfield

Mark is the father of  Hannah-Kate Lindfield, who was born with Pfeiffer syndrome

Our staff
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Karen Wilkinson-Bell

Charity Director

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Donna Connett

Charity Administrator

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