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Our patron
Professor Andrew Wilkie
FMedSci FRS
Professor Wilkie is the clinical geneticist who identified the gene mutation responsible for Apert syndrome and the molecular pathways underlying this and other craniosynostosis conditions. He is Nuffield Professor of Pathology at the MRC Weatherall Institute of Molecular Medicine at the University of Oxford and an Honorary Consultant in Clinical Genetics, Oxford University Hospitals NHS Trust.
Our trustees
Charlotte Ashby
Charlotte is an adult with unicoronal craniosynostosis
Paul Cornell
Chair
Paul is the parent of a child with Saethre-Chotzen syndrome
Charles Edwards
Treasurer
Charles is the parent of a child with sagittal craniosynostosis
Barry Fletcher
Vice Chair
Barry is an adult with and the parent of a child with sagittal craniosynostosis
Dr. Caroline Hilton
Secretary
Caroline is parent of a young adult with Apert syndrome
Dr. Mehran Moazen
Mehran is a Lecturer in Biomedical Engineering and Associate Professor at UCL
Darren Sloan
Darren is the parent of
a child with bi-coronal craniosynostosis
Colette Turnock
Colette is a Craniofacial
Nurse Specialist at Alder Hey Children’s Hospital
Our staff
Karen Wilkinson-Bell
Charity Director
Donna Connett
Charity Administrator