
Our patron
Professor Andrew Wilkie
FMedSci FRS
Professor Wilkie is the clinical geneticist who identified the gene mutation responsible for Apert syndrome and the molecular pathways underlying this and other craniosynostosis conditions. He is Nuffield Professor of Pathology at the MRC Weatherall Institute of Molecular Medicine at the University of Oxford and an Honorary Consultant in Clinical Genetics, Oxford University Hospitals NHS Trust.
Our trustees

Charlotte Ashby
Charlotte is an adult with unicoronal craniosynostosis

Paul Cornell
Chair
Paul is the parent of a child with Saethre-Chotzen syndrome

Charles Edwards
Treasurer
Charles is the parent of a child with sagittal craniosynostosis

David Coleman
David is the parent of a child with Apert syndrome

Dr. Caroline Hilton
Secretary
Caroline is parent of a young adult with Apert syndrome

Prof. Mehran Moazen
Mehran is Professor of Biomedical Engineering at UCL

Darren Sloan
Darren is the parent of
a child with bi-coronal craniosynostosis

Lucy Pearse
Vice Chair
Lucy is parent of a child
born with metopic craniosynostosis
Our staff

Karen Wilkinson-Bell
Charity Director

Donna Connett
Charity Administrator