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Family Walking

For parents

Having a child with a suspected or diagnosed craniofacial condition is a lot for any parent to come terms with.   

As well as providing information on how and where to seek specialist advice and help, Headlines can put you in touch with other parents for support.   We also have a members-only Facebook forum  where you can ask questions  of other parents.


For details, please email

Working with specialist researchers from the Centre for Appearance Research at the University of the West of England, Bristol, we have also produced two booklets and video to help parents with some of the common concerns and issues they may encounter when their baby is first diagnosed and when they undergo surgery. 


You can download a copy of the booklet 'My baby has craniosynostosis'  here  and a copy of 'Surgery for cranioysnostosis: a parent's guide' here

You can watch the video here.

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