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Become a member of Headlines

Becoming a member of Headlines means that you’ll receive:

  • our annual member magazine Headline News 

  • quarterly e-Newsletters

  • access to member events such as our annual Family Weekend, Days Out and the Headlines Conference & Information Day

  • access to our Private Facebook Group and other support networks

  • the opportunity to be put in touch with other people or families in your area with similar conditions

We do not charge for membership, but we encourage members to make donations and raise money by holding fundraising events.  


We receive no government funding and rely entirely on donations to fund our work.

Please do take a look at the Donate and Sponsor section for more information  on how to help.


Join Headlines

Are you:
Your name:
Your address:
Your contact numbers / email:
Affected person's details:

(Note: for GDPR purposes, this section should only be completed by a parent or guardian if the affected person is under the age of 18, or is unable to provide their own consent. If the affected person is over the age of 18 and can provide their own consent, please ask them to complete their own membership form):

Which condition you are interested in?
Please select 1 or more options:
How would you like us to contact you?
Please select 1 or more options:
Member Magazine (Headline News)
How did you hear about us?
Privacy Notice

Headlines is committed to protecting the privacy of all personal data that you provide to us, and we will treat this information as carefully as if it were our own. Our privacy notice (and any documents referenced in it) explains how we use personal data that you provide to us. By providing us with personal data, through our new member form or in other ways, or by using our website (, you are accepting and consenting to the practices described in this policy.

If at any time you’d like to change your information or how we communicate with you, please contact us at

We will only process your data to provide you with the benefits of membership e.g., to communicate with you, to organise national and/or regional events, or for other legitimate interests of the charity. We will never sell any of your personal data to third parties. In the following circumstances, we share a limited amount of personal data with third parties related to Headlines’ activities:

  • sharing your name and address with a company that sends out our postal communications;

  • sharing your name and email address with a company (MailChimp) whose mailing platform we use to send out our email communications;

  • if you are attending a Headlines event (such as the Family Weekend), we may need to share some details with partner organisations or individuals that are providing a service.

Thank you for your request to join headlines. You will shortly receive a welcome pack.

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