Headlines is the leading UK charity supporting people with craniosynostosis and other rare craniofacial conditions. 

Our vision is for a world where the physical, psychological and social impacts of craniosynostosis and rare craniofacial conditions are no more.

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What we do

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Our objectives are to:

  • provide support  for people throughout their life to overcome the physical, psychological and social impacts of living with  craniosynostosis and rare craniofacial conditions

  • facilitate research that seeks to advance understanding, ensures the provision of quality care, and identifies the best treatments for craniosynostosis and rare craniofacial conditions

  • raise awareness and educate people to improve public understanding of craniosynostosis and rare craniofacial conditions.

​We seek to achieve this in a variety of ways, including:

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