New Research Strategy launched for Rare Disease Day 2022

We are marking #RareDiseaseDay2022 with the launch of our first-ever research strategy, setting out a framework for our research work over the next 5 years. The strategy is focused around five key themes – Cause, Diagnosis, Treatment, Physical & Psychological Development and Awareness. As well as clinical and academic research, the strategy also encompasses social care and policy research to inform future policy making. Head to the ‘Research’ section of our website for further information.



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