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Living with craniosynostosis
in adulthood
Living with a rare craniofacial condition can present a variety of different challenges in adulthood.
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As part of a major project funded by the VTCT Foundation, a group of Headlines’ adult members worked alongside a team of research psychologists from the Centre for Appearance Research (CAR) and award-winning independent film makers Fine Rolling Media to produce a series of resources to help other adults with some of the key issues and concerns.
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​Each of the short videos below addresses a different theme: the videos are designed to be watched in conjunction with our booklet
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Living with craniosynostosis in adulthood
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Social experiences: Nammie & Charlotte
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Treatment experiences: Laura & Louise
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