Living with craniosynostosis
in adulthood

Living with a rare craniofacial condition can present a variety of different challenges in adulthood.

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As part of a major project funded by the VTCT Foundation, a group of Headlines’ adult members worked alongside a team of research psychologists from the Centre for Appearance Research (CAR) and award-winning independent film makers Fine Rolling Media to produce a series of resources to help other adults with some of the key issues and concerns.

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​Each of the short videos below addresses a different theme:  the videos are designed to be watched in conjunction with our booklet

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Living with craniosynostosis in adulthood 

 

 

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Being different: Will

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Social experiences: Nammie & Charlotte

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Treatment experiences: Laura & Louise

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Employment: Zoe

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Growing older: Sally

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