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New video for parents
Last year, we worked with Dr Nicola Stock and her team from the Centre for Appearance Research at UWE Bristol to produce a leaflet for...
Supporting all those affected by
craniosynostosis and rare craniofacial conditions
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We are the leading UK charity supporting people with craniosynostosis and other rare craniofacial conditions.
Craniosynostosis is a rare craniofacial condition where two or more plates of the skull prematurely fuse to each other, usually before birth. This results in the baby’s skull not growing properly and the newborn’s head shape being different at birth. The shape of the head may continue to change after birth as it grows.
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