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Abseil Challenge 2021
After several postponements as a result of the pandemic, our team of fearless fundraisers finally made it to the top (and bottom!) of...
Supporting all those affected by
craniosynostosis and rare craniofacial conditions
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We are the leading UK charity supporting people with craniosynostosis and other rare craniofacial conditions.
Craniosynostosis is a rare craniofacial condition where two or more plates of the skull prematurely fuse to each other, usually before birth. This results in the baby’s skull not growing properly and the newborn’s head shape being different at birth. The shape of the head may continue to change after birth as it grows.
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