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Supporting families with a craniofacial condition in the UK and overseas
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Financial Support

Children with Craniosynostosis and their carers may be eligible for financial support. The level of support will depend on each individual case.

As at January 2011, support available includes for example (this is not an exhaustive list):

As this an ever changing feast and as we are not financial experts we recommend that you make touch with Contact a Family (CAF), which is a charity set up to help families understand what financial support may be available to them and how to apply for it. The forms can be lengthy and difficult to complete and CAF can provide support in accessing the benefits available.

Please note that the forms do need to be filled out correctly in order to access the appropriate support - please also use the expertise of the specialists involved in your child's care to achieve this.  If you do not provide the required information this could result in a lower award or your claim being refused.

Click here to view the CAF website or call them on 0808 808 3555.

Alternatively please refer to the information on the Direct Gov website relevant to carers' benefits.