Other Useful Links

Association for Spina Bifida and Hydrocephalus (ASBAH)
http://www.asbah.org

Cleft Lip and Palate Association (CLAPA)
http://www.clapa.com

Let's Face It
http://www.lets-face-it.org.uk
An organisation for the facially disfigured.

Ameriface (previously AboutFace USA)
http://www.ameriface.org

Children's Craniofacial Association
http://www.ccakids.com

Waving, not drowning
http://www.workingfamilies.org.uk
A Support Group for parents of disabled children who work or would like to work.

Network 81
http://www.network81.org
Network 81 is a national network of parents working towards properly resourced inclusive education
for children with special educational needs.

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Teeter's Page…access to an Apert Syndrome Listserver and contact with other families worldwide
http://www.apert.org

Family Village.....a contact organisation where you can post requests for others in a similar position, or reply to their requests
http://www.familyvillage.wisc.edu/

Australian Craniofacial Unit
http://www.wch.sa.gov.au/services/az/divisions/psurg/craniofacial/index.html

Treacher-Collins Syndrome Information
http://www.treachercollins.co.uk

US National Library of Medicine
http://www.ncbi.nlm.nih.gov/PubMed/

British Society for Human Genetics
http://www.bshg.org.uk
 

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